One of our young people has kindly shared their choledochal cyst story with us to help raise awareness of the condition
CLDF visited Hertfordshire on Saturday 4th February for a family event at Bedwell Community Centre in Stevenage.
As part of our month raising awareness of choledochal cysts, Leanne has kindly shared her daughter Saffron’s story, who was born with a choledochal cyst and biliary atresia.
“I had never been to a CLDF event and didn’t know what to expect but it was great fun. The best bit was building models out of chocolate and meeting other children who have liver disease like me."
“When I called I felt a surge of relief. I spoke to CLDF’s families officer who was so kind and just listened to our journey.”
“CLDF is so valuable to us because they help you not feel like you're not alone. They understand. They help provide fun when the world doesn't always seem to be that fun.”