One of our young people has kindly shared their choledochal cyst story with us to help raise awareness of the condition
CLDF visited Hertfordshire on Saturday 4th February for a family event at Bedwell Community Centre in Stevenage.
As part of our month raising awareness of choledochal cysts, Leanne has kindly shared her daughter Saffron’s story, who was born with a choledochal cyst and biliary atresia.
“I had never been to a CLDF event and didn’t know what to expect but it was great fun. The best bit was building models out of chocolate and meeting other children who have liver disease like me."
“When I called I felt a surge of relief. I spoke to CLDF’s families officer who was so kind and just listened to our journey.”
“CLDF is so valuable to us because they help you not feel like you're not alone. They understand. They help provide fun when the world doesn't always seem to be that fun.”
“When we Googled biliary atresia, as you naturally do, all the results were from medical journals except for the CLDF page which explained it all in plain English.”
“I met Rich from CLDF. He told me about all the stuff the charity does including Breakaway, a residential trip where I could do a high ropes adventure course and a 24 hour survival course.”
“A lovely lady from CLDF came to see me in hospital. She sat with me while I cried and then told me about the Foundation and how they could help us.”
Childhood liver disease can affect families across the globe. US mum Natalie has shared her daughter Clara’s story with us to help raise awareness of PFIC this month
Mum Gemma kindly shared the story of her son Oliver, who was diagnosed with PFIC as a baby
To help highlight pruritus, one of the common symptoms of childhood liver disease, Rachel has kindly shared her story of her children Wren and Milo
"Having liver disease can be hard, but I want young people and their parents to know that you are able to accomplish great things despite your condition."
Shannon has kindly shared her story about her five month old daughter Liberty and her diagnosis of biliary atresia.
Mum Tamisa kindly shares the story of her daughter Mia, who was diagnosed with biliary atresia after being very jaundiced as a baby
When Wendy’s son Toby was younger she remembers how important it was to know about older children with the same condition and that they were doing fine. Now she shares her story to help other families…
Harry became a bit of a celebrity last December when he ran laps around the BBC Breakfast red sofa on live, national television. This is his story.
After 12 years with biliary atresia Sam had a liver transplant this year. His mum Anna shares their story…
Fiona shares the story of her son Michael, who is nearly 21 and living with biliary atresia
Jess’ son Connor was diagnosed with biliary atresia at 12 weeks old. She kindly shares their story…
Mum Lisa shares the story of her son Jack and how he was diagnosed with biliary atresia
Mum Carolina shares her son Hugo’s story to help us raise awareness of biliary atresia this month…
11 week old Sophie has had her Kasai and continues to fight. Mum Sarah shared their story to help raise awareness of biliary atresia.
“My name is Emma and I would love to share my story with all of the CLDF families, especially those who have been affected by biliary atresia.”
Hannah has refused to let biliary atresia define her or hold her back from living her life to the fullest. Mum Karen shared her story
Clare shares her story of having biliary atresia as a child before a liver transplant at the age of 24
Mum Rachel shares the story of her son Caius’ diagnosis and Kasai, and what they expect from the future.
Olivia was born with biliary atresia and had a liver transplant at 9 years old. Now 17 and at college, she kindly shared her story with us.
Six year old Elijah was diagnosed with biliary atresia at 4 weeks old. His mum Lisa shared their story to help us raise awareness of childhood liver disease this month.
Liam had a slow recovery after being diagnosed with biliary atresia. Mum Nadia shared their story to help raise awareness of the condition.
Since having her Kasai at four weeks old Freya has gone from strength to strength. Mum Penny shared their story to help other families
Fiona explains what it was like when she found out her son had biliary atresia and how she feels about it now.
Nicky has shared her daughter Holly’s story to help us raise awareness of biliary atresia this month…
To help CLDF raise awareness of biliary atresia month through November, Rob has kindly shared his daughter’s story…
Amy has shared her story of her daughter Lily’s diagnosis of biliary atresia to help raise awareness of the condition
Through November we are sharing biliary atresia stories kindly sent in by our families. Dad Peter is starting us off with Louis' story…
Mum Jenni shares the alpha-1 story of her son Jack and his diagnosis as a baby
Cathy has kindly shared her story of her son Benjamin and his alpha-1 deficiency to help raise awareness of the condition…
To help CLDF raise awareness of alpha-1 antitrypsin deficiency this month, Janine has kindly shared her daughter Rosina’s story
Melanie has shared her story of her son Harry and his alpha-1 antitrypsin deficiency to help raise awareness of the condition…
To help CLDF raise awareness of alpha-1 antitrypsin deficiency this month, Wendy has shared her son Noah’s story…
To help CLDF raise awareness of alpha-1 antitrypsin deficiency this month, Penny has kindly shared her son’s story
To help CLDF raise awareness of alpha-1 antitrypsin deficiency this month, Val has kindly shared her daughter Abigail’s story
To help CLDF raise awareness of alpha-1 antitrypsin deficiency this month, Ray and Jo have shared their daughter Sadie’s story…
CLDF are proud to be the chosen charity for Transplant Toys in October
As all our families know, the news that your child has a serious liver disease comes as a shattering blow. Here Hannah shares her experience
To start off our month of alpha-1 antitrypsin deficiency awareness, dad Chris kindly shared his son Charlie’s story...
James and Keira are taking on the Great North Run this weekend
To help highlight autoimmune liver disease through August, Sandra shared her daughter Amelia's story...
To help highlight autoimmune liver disease through August, we enlisted the help of Lucia who kindly shared her daughter Amy's story...