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Blog archive

Written by Anonymous on 14/02/2017 10:37
One of our young people has kindly shared their choledochal cyst story with us to help raise awareness of the condition
Written by CLDF on 09/02/2017 09:48
CLDF visited Hertfordshire on Saturday 4th February for a family event at Bedwell Community Centre in Stevenage.
Written by Leanne on 07/02/2017 10:25
As part of our month raising awareness of choledochal cysts, Leanne has kindly shared her daughter Saffron’s story, who was born with a choledochal cyst and biliary atresia.
Written by Melissa on 24/01/2017 16:25
“I had never been to a CLDF event and didn’t know what to expect but it was great fun. The best bit was building models out of chocolate and meeting other children who have liver disease like me."
Written by Carolina on 24/01/2017 16:20
“When I called I felt a surge of relief. I spoke to CLDF’s families officer who was so kind and just listened to our journey.”
Written by Charlie on 24/01/2017 16:13
“CLDF is so valuable to us because they help you not feel like you're not alone. They understand. They help provide fun when the world doesn't always seem to be that fun.”
Written by Sam on 24/01/2017 16:04
“When we Googled biliary atresia, as you naturally do, all the results were from medical journals except for the CLDF page which explained it all in plain English.”
Written by Jamie on 24/01/2017 15:57
“I met Rich from CLDF. He told me about all the stuff the charity does including Breakaway, a residential trip where I could do a high ropes adventure course and a 24 hour survival course.”
Written by Alex on 24/01/2017 15:48
“A lovely lady from CLDF came to see me in hospital. She sat with me while I cried and then told me about the Foundation and how they could help us.”
Written by Natalie on 24/01/2017 09:43
Childhood liver disease can affect families across the globe. US mum Natalie has shared her daughter Clara’s story with us to help raise awareness of PFIC this month
Written by Gemma on 11/01/2017 10:14
Mum Gemma kindly shared the story of her son Oliver, who was diagnosed with PFIC as a baby
Written by Rachel on 13/12/2016 11:27
To help highlight pruritus, one of the common symptoms of childhood liver disease, Rachel has kindly shared her story of her children Wren and Milo
Written by Keith on 29/11/2016 16:20
"Having liver disease can be hard, but I want young people and their parents to know that you are able to accomplish great things despite your condition."
Written by Shannon on 24/11/2016 16:32
Shannon has kindly shared her story about her five month old daughter Liberty and her diagnosis of biliary atresia.
Written by Tamisa on 24/11/2016 15:59
Mum Tamisa kindly shares the story of her daughter Mia, who was diagnosed with biliary atresia after being very jaundiced as a baby
Written by Wendy on 24/11/2016 15:26
When Wendy’s son Toby was younger she remembers how important it was to know about older children with the same condition and that they were doing fine. Now she shares her story to help other families…
Written by Clare on 24/11/2016 15:08
Harry became a bit of a celebrity last December when he ran laps around the BBC Breakfast red sofa on live, national television. This is his story.
Written by Anna on 24/11/2016 13:00
After 12 years with biliary atresia Sam had a liver transplant this year. His mum Anna shares their story…
Written by Fiona on 24/11/2016 12:43
Fiona shares the story of her son Michael, who is nearly 21 and living with biliary atresia
Written by Jess on 22/11/2016 12:27
Jess’ son Connor was diagnosed with biliary atresia at 12 weeks old. She kindly shares their story…
Written by Lisa on 22/11/2016 12:17
Mum Lisa shares the story of her son Jack and how he was diagnosed with biliary atresia
Written by Carolina on 16/11/2016 10:30
Mum Carolina shares her son Hugo’s story to help us raise awareness of biliary atresia this month…
Written by Sarah on 15/11/2016 12:43
11 week old Sophie has had her Kasai and continues to fight. Mum Sarah shared their story to help raise awareness of biliary atresia.
Written by Emma on 15/11/2016 12:21
“My name is Emma and I would love to share my story with all of the CLDF families, especially those who have been affected by biliary atresia.”
Written by Karen on 15/11/2016 11:36
Hannah has refused to let biliary atresia define her or hold her back from living her life to the fullest. Mum Karen shared her story
Written by Clare on 15/11/2016 10:56
Clare shares her story of having biliary atresia as a child before a liver transplant at the age of 24
Written by Rachel on 15/11/2016 10:26
Mum Rachel shares the story of her son Caius’ diagnosis and Kasai, and what they expect from the future.
Written by Olivia on 15/11/2016 09:34
Olivia was born with biliary atresia and had a liver transplant at 9 years old. Now 17 and at college, she kindly shared her story with us.
Written by Lisa on 14/11/2016 10:53
Six year old Elijah was diagnosed with biliary atresia at 4 weeks old. His mum Lisa shared their story to help us raise awareness of childhood liver disease this month.
Written by Nadia on 11/11/2016 10:13
Liam had a slow recovery after being diagnosed with biliary atresia. Mum Nadia shared their story to help raise awareness of the condition.
Written by Penny on 10/11/2016 14:36
Since having her Kasai at four weeks old Freya has gone from strength to strength. Mum Penny shared their story to help other families
Written by Fiona on 23/06/2015 15:15
Fiona explains what it was like when she found out her son had biliary atresia and how she feels about it now.
Written by Nicky on 07/11/2016 08:52
Nicky has shared her daughter Holly’s story to help us raise awareness of biliary atresia this month…
Written by Rob on 03/11/2016 16:40
To help CLDF raise awareness of biliary atresia month through November, Rob has kindly shared his daughter’s story…
Written by Amy on 03/11/2016 11:24
Amy has shared her story of her daughter Lily’s diagnosis of biliary atresia to help raise awareness of the condition
Written by Peter on 01/11/2016 10:07
Through November we are sharing biliary atresia stories kindly sent in by our families. Dad Peter is starting us off with Louis' story…
Written by Jenni on 31/10/2016 09:45
Mum Jenni shares the alpha-1 story of her son Jack and his diagnosis as a baby
Written by Cathy on 28/10/2016 09:35
Cathy has kindly shared her story of her son Benjamin and his alpha-1 deficiency to help raise awareness of the condition…
Written by Janine on 24/10/2016 14:12
To help CLDF raise awareness of alpha-1 antitrypsin deficiency this month, Janine has kindly shared her daughter Rosina’s story
Written by Melanie on 20/10/2016 10:11
Melanie has shared her story of her son Harry and his alpha-1 antitrypsin deficiency to help raise awareness of the condition…
Written by Wendy on 18/10/2016 08:30
To help CLDF raise awareness of alpha-1 antitrypsin deficiency this month, Wendy has shared her son Noah’s story…
Written by Penny on 14/10/2016 10:06
To help CLDF raise awareness of alpha-1 antitrypsin deficiency this month, Penny has kindly shared her son’s story
Written by Val on 13/10/2016 09:27
To help CLDF raise awareness of alpha-1 antitrypsin deficiency this month, Val has kindly shared her daughter Abigail’s story
Written by Ray and Jo on 10/10/2016 11:59
To help CLDF raise awareness of alpha-1 antitrypsin deficiency this month, Ray and Jo have shared their daughter Sadie’s story…
Written by CLDF on 10/10/2016 09:39
CLDF are proud to be the chosen charity for Transplant Toys in October
Written by Hannah on 06/10/2016 10:23
As all our families know, the news that your child has a serious liver disease comes as a shattering blow. Here Hannah shares her experience
Written by Chris on 04/10/2016 16:09
To start off our month of alpha-1 antitrypsin deficiency awareness, dad Chris kindly shared his son Charlie’s story...
Written by CLDF on 08/09/2016 16:24
James and Keira are taking on the Great North Run this weekend
Written by Sandra on 24/08/2016 10:42
To help highlight autoimmune liver disease through August, Sandra shared her daughter Amelia's story...
Written by Lucia on 16/08/2016 09:30
To help highlight autoimmune liver disease through August, we enlisted the help of Lucia who kindly shared her daughter Amy's story...