Liver transplantation is considered for those with chronic liver disease when other forms of treatment haven’t worked, or when a child or young person no longer has a good quality of life. Transplant may also be necessary for those with acute liver disease.
Some facts about liver transplantation
- Every year approximately 100 children or young people will receive a liver transplant in the UK
- A significant number of babies requiring a liver transplant under the age of one will have biliary atresia
- The five year survival for pre-planned liver transplantation is approximately 85% in the UK
Children and young people who undergo a liver transplant will require monitoring and daily medication for the rest of their lives to prevent them from rejecting their new liver – transplant is not a cure, it is a treatment programme
There are ten transplant centres in the UK. Three are specialist children's liver units:
The adult liver units are:
The transplant teams are made up of a large number of experienced individuals, including doctors, nurses, surgeons, anaesthetists, clinical nurse specialists, transplant coordinators, dietitians, social workers, play therapists, psychologists etc.
Join the organ donor register
There is always the need to increase the number of organs available for liver transplantation, particularly in children.
There is no minimum age for joining the NHS Organ Donor Register. Parents/guardians can register their children and children can register themselves.
Children under 12 in Scotland and under 18 in the rest of the UK at the time they registered need consent from their parent or guardian before donation can take place.
Children over 12 in Scotland are considered legally competent to register themselves and their parent/guardian does not have the legal right to overrule their wishes.
If you would like to find out more information about organ donation in the UK or how you can register to be an organ donor, visit the NHS organ donation website.
It is recommended that you talk to your family and tell them your wishes, whatever your age.
British Transplant Games
If a child or young person has had a transplant and is interested in taking part in the British Transplant Games, find out more at britishtransplantgames.co.uk
The Medicines and Healthcare Products Regulatory Agency (MHRA) has updated its advice on the prescribing and dispensing of oral tacrolimus products for transplant patients. Please use the links below to download further information.
The information on this site is for guidance only. It is not a substitute for professional medical care by a qualified doctor or other health care professional. ALWAYS check with your medical team if you have any concerns about your condition or treatment. CLDF is not responsible or liable, directly or indirectly, for any form of damages resulting from the use (or misuse) of information contained in or implied by the information on this site.