Rare Disease Day 2017
This year Rare Disease Day
is to be held on Tuesday 28th February, when we’ll see people all over the world come together to advocate for more research on rare diseases. Over the last few decades, funds dedicated to rare disease research have increased. But it can’t stop there.
Rare Disease Day 2017 is an opportunity to call upon researchers, universities, students, companies, policy makers and clinicians to do more research and to make them aware of the importance of research for the rare disease community.
There are over 6,000 rare diseases, including over 100 childhood liver diseases, and for most there is no cure. CLDF is supporting Rare Disease Day to represent children and young people affected by a childhood liver disease, and their families.
At CLDF, we see first-hand the impact which rare diseases can have not only on the people diagnosed with them, but their families and loved ones too. We recognise that the impact of liver disease, and of other life-long, rare diseases is huge on all the family, which is why we develop an annual Events Programme
, bringing families together to share experiences and connect with others who understand their situation.
To find out more about the different events planned around the world for this year’s Rare Disease Day visit www.rarediseaseday.org
or, to spread the word and raise awareness amongst the people you know why not share a link to the website. You can also post using #raredisease
or share your story online and let everyone know that you or someone you care for is living with a rare disease.
Research is key. It brings hope to the millions of people living with a rare disease across the world and their families.