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Home Blog Claire's biliary atresia story

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Claire's biliary atresia story

Written by Claire on 21/06/2017 11:03

I wanted to share my experience and hopefully give some support to others with this condition.

I was born with biliary atresia and had a Kasai operation when I was only a few weeks old. I remember my mum later telling me that they gave me about 6 months to live initially... happy to say that I'm still here at 36 years old with my own liver and happily living in New Zealand!

They gave me about 6 months to live

I don't have too many interruptions I guess save tests annually and ongoing monitoring to make sure everything is working ok. From living in different countries I have been told by some doctors that it is inevitable that I will require a transplant at some stage in my life but my regular specialist is of the opinion that if I continue to look after myself I may not need one. Who knows I guess!

Thank you Claire for sharing your story and helping us raise awareness of childhood liver disease. If you have been inspired to share your own story, please email To read more stories visit our blogs section