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Home Blog Cathan’s biliary atresia story

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Cathan’s biliary atresia story

Written by Joanne on 27/06/2017 15:30

Cathan was born on 26th Dec 2014 weighing 8lb 6oz .After a few days at home he became jaundiced and the midwife sent us to our local hospital as he was also losing weight. We returned back to our local a few days later and were told that Cathan was fine and didn't need a blood test, even though he was still jaundiced.

When Cathan was four weeks old I felt that something wasn't right and we returned again to our local hospital. Cathan's stools were pale, the whites of his eyes were green and he was continually throwing up his feeds. Bloods were finally done and Cathan was admitted that evening. In the next couple of days we flew from Northern Ireland to Birmingham Children's Hospital.

Cathan in hospital

 

In Birmingham Cathan was diagnosed with biliary atresia and had a procedure called a Kasai. We were heartbroken.

We returned home with Cathan but over the next few months he was admitted to our local many times as he was fighting off infections. We also flew to Birmingham as he was extremely ill, and in October 2015 he was assessed for a liver transplant. However, Cathan has remained on the suspended list as he surprised us all and has kept fighting.

Cathan now

 

Cathan spent the majority of his first year in hospital, even throughout his first birthday and first Christmas, which was spent in Antrim Area Hospital. He continues to surprise us; we cannot predict his future. Cathan is now two years old and we know that he may need a liver transplant at some stage of his life - he is our little fighter.

Thank you Joanne for sharing your and Cathan’s story and helping raise awareness of childhood liver disease. If you’ve been inspired to share your own story, please email families@childliverdisease.org.