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Blog archive

Written by CLDF on 24/10/2017 14:23
Help spread the word about Big Yellow Friday 2018
Written by CLDF on 18/10/2017 16:21
It was fantastic to see so many people joining us on the CLDF Central England Family Weekend
Written by CLDF on 17/10/2017 15:27
The CLDF community shared their top tips about encouraging their children to take medication
Written by Mel on 08/09/2017 12:36
To help raise awareness in Organ Donation Week 2017, Mel kindly shared her daughter Elena's story...
Written by John on 08/09/2017 11:32
To help raise awareness in Organ Donation Week 2017, John kindly shared his daughter Isabella's story...
Written by Emma on 08/09/2017 11:04
To help raise awareness in Organ Donation Week 2017, Emma has shared her transplant story...
Written by Abbey on 07/09/2017 10:10
To help raise awareness in Organ Donation Week 2017, Abbey kindly shared her son Jack's story...
Written by Jane on 05/09/2017 12:09
To help raise awareness in Organ Donation Week 2017, Jane kindly shared her daughter Naomi's story
Written by Lisa on 04/09/2017 11:24
To help raise awareness in Organ Donation Week 2017, Lisa has shared her transplant story...
Written by Kirstin on 04/09/2017 11:06
To help raise awareness in Organ Donation Week 2017, Kirstin kindly shared her daughter's story
Written by CLDF on 22/08/2017 14:44
On Saturday 19th August, eight children and their parents headed into the Oxfordshire woods for Wild Camp 2017
Written by Charlotte on 22/08/2017 11:59
Health Visitor Week 2017 is from 21 – 25 August. Mum Charlotte told us about her experience with her new daughter's diagnosis
Written by CLDF on 08/08/2017 16:11
We had an incredible time at the very first CLDF Weekender!
Written by Aidan on 26/07/2017 09:43
As we mark World Hepatitis Day this Friday, 20 year old Aidan shares her experience of living with Hepatitis C
Written by Melissa on 25/07/2017 10:30
For Melissa it was ‘hair today, gone tomorrow’ after she hit her fundraising target!
Written by CLDF on 18/07/2017 11:22
Later this month we'll be celebrating the British Transplant Games in North Lanarkshire
Written by Aisling, CLDF Health & Research Information Manager on 04/07/2017 12:29
We want to ensure that CLDF’s health information is accurate; up to date; clear and led by patients and families
Written by Joanne on 27/06/2017 15:30
Mum Joanne knew that something wasn’t right and followed her instincts to get a diagnosis. Here’s her son Cathan’s story…
Written by Claire on 21/06/2017 11:03
Claire has kindly shared her story with CLDF about living with biliary atresia…
Written by CLDF on 21/06/2017 09:12
Find out what Luke’s up to in his Talk, Tell, Transform film
Written by Dr Jake Mann on 12/05/2017 12:29
In our latest blog Dr Jake Mann tells us about a new study which is being planned to look into non-alcoholic fatty liver disease
Written by CLDF on 25/05/2017 14:37
It was fantastic to see so many people joining us on our Scotland Family Weekend
Written by Olivia on 11/05/2017 16:29
For International Nurses' Day 2017, Olivia explains how her experiences as a liver patient helped her decide to become a Nurse herself
Written by CLDF on 05/05/2017 09:03
In her Talk, Tell, Transform film, Daisy tells us what gives her motivation
Written by CLDF on 04/05/2017 09:09
In her Talk, Tell, Transform 2017 film, Roisin tells us who was there to support her when she needed them
Written by CLDF on 03/05/2017 08:59
Our next Talk, Tell, Transform film in 2017 comes from Lucy
Written by CLDF on 02/05/2017 09:41
Here’s Merlee’s Talk, Tell, Transform film as part of our 2017 project
Written by CLDF on 28/04/2017 09:16
Our next 2017 Talk, Tell, Transform film comes from Aimee
Written by CLDF on 27/04/2017 12:13
Will’s Talk, Tell, Transform story is inspired by the viewpoint of his parents
Written by CLDF on 26/04/2017 09:49
Nora shared her story as part of our Talk, Tell, Transform project in 2017
Written by CLDF on 25/04/2017 09:29
Our next Talk, Tell, Transform film in 2017 comes from Demi
Written by CLDF on 24/04/2017 08:53
To mark the launch of our 2017 Talk, Tell, Transform films, we're sharing Lucia’s story with you
Written by Oliver on 12/04/2017 15:42
Oliver took on the Barcelona marathon in March in aid of his cousin Dylan
Written by Jacquie - Families Officer on 04/04/2017 13:53
Jacquie is CLDF’s Families Officer. Here's what she gets up to each day...
Written by CLDF on 17/03/2017 12:29
We had a fantastic weekend in Northern Ireland with fun activities, good food, and great conversation!
Written by Jade on 14/03/2017 14:53
Jade has kindly shared her daughter Lilly’s story to help raise awareness of biliary atresia and encourage parents to be yellow alert.
Written by Sarah on 22/02/2017 11:35
Mum Sarah has kindly shared her story of daughter Mya, who was born with a choledochal cyst.
Written by Anonymous on 14/02/2017 10:37
One of our young people has kindly shared their choledochal cyst story with us to help raise awareness of the condition
Written by CLDF on 09/02/2017 09:48
CLDF visited Hertfordshire on Saturday 4th February for a family event at Bedwell Community Centre in Stevenage.
Written by Leanne on 07/02/2017 10:25
As part of our month raising awareness of choledochal cysts, Leanne has kindly shared her daughter Saffron’s story, who was born with a choledochal cyst and biliary atresia.
Written by Melissa on 24/01/2017 16:25
“I had never been to a CLDF event and didn’t know what to expect but it was great fun. The best bit was building models out of chocolate and meeting other children who have liver disease like me."
Written by Carolina on 24/01/2017 16:20
“When I called I felt a surge of relief. I spoke to CLDF’s families officer who was so kind and just listened to our journey.”
Written by Charlie on 24/01/2017 16:13
“CLDF is so valuable to us because they help you not feel like you're not alone. They understand. They help provide fun when the world doesn't always seem to be that fun.”
Written by Sam on 24/01/2017 16:04
“When we Googled biliary atresia, as you naturally do, all the results were from medical journals except for the CLDF page which explained it all in plain English.”
Written by Jamie on 24/01/2017 15:57
“I met Rich from CLDF. He told me about all the stuff the charity does including Breakaway, a residential trip where I could do a high ropes adventure course and a 24 hour survival course.”
Written by Alex on 24/01/2017 15:48
“A lovely lady from CLDF came to see me in hospital. She sat with me while I cried and then told me about the Foundation and how they could help us.”
Written by Natalie on 24/01/2017 09:43
Childhood liver disease can affect families across the globe. US mum Natalie has shared her daughter Clara’s story with us to help raise awareness of PFIC this month
Written by Gemma on 11/01/2017 10:14
Mum Gemma kindly shared the story of her son Oliver, who was diagnosed with PFIC as a baby
Written by Rachel on 13/12/2016 11:27
To help highlight pruritus, one of the common symptoms of childhood liver disease, Rachel has kindly shared her story of her children Wren and Milo
Written by Keith on 29/11/2016 16:20
"Having liver disease can be hard, but I want young people and their parents to know that you are able to accomplish great things despite your condition."