Mum Joanne knew that something wasn’t right and followed her instincts to get a diagnosis. Here’s her son Cathan’s story…
Claire has kindly shared her story with CLDF about living with biliary atresia…
Find out what Luke’s up to in his Talk, Tell, Transform film
In our latest blog Dr Jake Mann tells us about a new study which is being planned to look into non-alcoholic fatty liver disease
It was fantastic to see so many people joining us on our Scotland Family Weekend
For International Nurses' Day 2017, Olivia explains how her experiences as a liver patient helped her decide to become a Nurse herself
In her Talk, Tell, Transform film, Daisy tells us what gives her motivation
In her Talk, Tell, Transform 2017 film, Roisin tells us who was there to support her when she needed them
Our next Talk, Tell, Transform film in 2017 comes from Lucy
Here’s Merlee’s Talk, Tell, Transform film as part of our 2017 project
Our next 2017 Talk, Tell, Transform film comes from Aimee
Will’s Talk, Tell, Transform story is inspired by the viewpoint of his parents
Nora shared her story as part of our Talk, Tell, Transform project in 2017
Our next Talk, Tell, Transform film in 2017 comes from Demi
To mark the launch of our 2017 Talk, Tell, Transform films, we're sharing Lucia’s story with you
Oliver took on the Barcelona marathon in March in aid of his cousin Dylan
Jacquie is CLDF’s Families Officer. Here's what she gets up to each day...
We had a fantastic weekend in Northern Ireland with fun activities, good food, and great conversation!
Jade has kindly shared her daughter Lilly’s story to help raise awareness of biliary atresia and encourage parents to be yellow alert.
Mum Sarah has kindly shared her story of daughter Mya, who was born with a choledochal cyst.
One of our young people has kindly shared their choledochal cyst story with us to help raise awareness of the condition
CLDF visited Hertfordshire on Saturday 4th February for a family event at Bedwell Community Centre in Stevenage.
As part of our month raising awareness of choledochal cysts, Leanne has kindly shared her daughter Saffron’s story, who was born with a choledochal cyst and biliary atresia.
“I had never been to a CLDF event and didn’t know what to expect but it was great fun. The best bit was building models out of chocolate and meeting other children who have liver disease like me."
“When I called I felt a surge of relief. I spoke to CLDF’s families officer who was so kind and just listened to our journey.”
“CLDF is so valuable to us because they help you not feel like you're not alone. They understand. They help provide fun when the world doesn't always seem to be that fun.”
“When we Googled biliary atresia, as you naturally do, all the results were from medical journals except for the CLDF page which explained it all in plain English.”
“I met Rich from CLDF. He told me about all the stuff the charity does including Breakaway, a residential trip where I could do a high ropes adventure course and a 24 hour survival course.”
“A lovely lady from CLDF came to see me in hospital. She sat with me while I cried and then told me about the Foundation and how they could help us.”
Childhood liver disease can affect families across the globe. US mum Natalie has shared her daughter Clara’s story with us to help raise awareness of PFIC this month
Mum Gemma kindly shared the story of her son Oliver, who was diagnosed with PFIC as a baby
To help highlight pruritus, one of the common symptoms of childhood liver disease, Rachel has kindly shared her story of her children Wren and Milo
"Having liver disease can be hard, but I want young people and their parents to know that you are able to accomplish great things despite your condition."
Shannon has kindly shared her story about her five month old daughter Liberty and her diagnosis of biliary atresia.
Mum Tamisa kindly shares the story of her daughter Mia, who was diagnosed with biliary atresia after being very jaundiced as a baby
When Wendy’s son Toby was younger she remembers how important it was to know about older children with the same condition and that they were doing fine. Now she shares her story to help other families…
Harry became a bit of a celebrity last December when he ran laps around the BBC Breakfast red sofa on live, national television. This is his story.
After 12 years with biliary atresia Sam had a liver transplant this year. His mum Anna shares their story…
Fiona shares the story of her son Michael, who is nearly 21 and living with biliary atresia
Jess’ son Connor was diagnosed with biliary atresia at 12 weeks old. She kindly shares their story…
Mum Lisa shares the story of her son Jack and how he was diagnosed with biliary atresia
Mum Carolina shares her son Hugo’s story to help us raise awareness of biliary atresia this month…
11 week old Sophie has had her Kasai and continues to fight. Mum Sarah shared their story to help raise awareness of biliary atresia.
“My name is Emma and I would love to share my story with all of the CLDF families, especially those who have been affected by biliary atresia.”
Hannah has refused to let biliary atresia define her or hold her back from living her life to the fullest. Mum Karen shared her story
Clare shares her story of having biliary atresia as a child before a liver transplant at the age of 24
Mum Rachel shares the story of her son Caius’ diagnosis and Kasai, and what they expect from the future.
Olivia was born with biliary atresia and had a liver transplant at 9 years old. Now 17 and at college, she kindly shared her story with us.
Six year old Elijah was diagnosed with biliary atresia at 4 weeks old. His mum Lisa shared their story to help us raise awareness of childhood liver disease this month.
Liam had a slow recovery after being diagnosed with biliary atresia. Mum Nadia shared their story to help raise awareness of the condition.